Monday was pretty smooth in JT-land. I went into the office for most of the day while James hung out with his mom and the cartoon box during the morning. He muddled through PT and speech and spent some time with his grandmother while Jenn got out to run some errands.
One noticeable change in JT was that there was some swelling on the backside of his head where the ventric tube had been. We called in a doctor to look at it and they seemed pretty cool that it was just swelling and not an overall increase in brain pressure (other symptoms of elevated pressure- nausea and headache). JT wrapped up his Monday with a wonderful visit from his friend next door, Izzy, and her mom.
This morning, James' swelling had seemed to migrate toward his right ear. Again, the doctors were called up to take a peek and they seemed okay with it.
At 1pm today Jenn and I met with the whole "Larsen Team" and reviewed JT's case. According to the speech and physical therapist they felt that he was doing well and that he would benefit from being at home where he would be comfortable, play and not have the pressure to perform. The medical members felt that James was stabilizing well and that, really, neurology would (and should) have the final call as to when J was good to go. The general feeling is that Friday may be the day.
When he does come home, JT will have home PT visits until he is strong enough to make the trips to the PT office. Additionally, JT will be back at Maine Med (probably next week) for another procedure to have a central line put into one of his veins. This will aid in the procedures that will follow for the next fourteen months - radiation and chemotherapy. At that time he'll be put to sleep and the team will also perform a spinal tap to check and see if there are any other tumors (the bright side of this is that the MRI showed no 'seeding' in the spine).
Another post on the pathology, diagnosis and treatment will follow soon. Love to you all.
dct
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3 comments:
"Home": right now it seems like the most beautiful word in the English language.
Our love to all of you!
M, J, S, and C
Based on your latest post it seems that there is so much to look forward to and to be thankful for... you also reference what will be a long 14months... with the radiation and such. Can only imagine all the conflicting feelings you and Jenn are experiencing. The whole Stuart/Mack clan is rooting you on and thinking of you often. Here's to believing that love and positivity are much more than kinds words and pretty thoughts. There is power in the masses my friends and I believe you have hundreds upon hundreds offering you strength and hope. Much love, Jen and Kevin, Diane and Jerry, Tom and Jennifer
It was great seeing you all yesterday... Especially you, James...and even if we couldn't get any cheeseburgers!
See you tomorrow with RCPT!
Cuckoo!
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