Thursday, June 26, 2008

Boomerang

Throw us out there and we'll fly right back...

Although we left Maine Med just last night we found ourselves returning today for a radiation consultation. JT, Jenn and I met with Dr. Jeff Young who will be administering James' radiation therapy. I felt that the consult was positive (although James refused to talk the entire time) and we were able to discuss the ins and outs of the therapy and really what to expect. The biggest challenge will be to see if JT is willing/able to remain still for the brief period he is on the radiation machine.

If during our simulation visits it appears that he can't (or won't) then we'll have to 'resort' to using an anesthesia to lull him every day. A prospect that makes this process just that much harder to swallow.

So, we've taken the first step in talking with JT about the big, scary machine and how he fits into the mix (plenty of Star Wars metaphors). Now we need to reassure him that everything is cool and have him practice lying on his stomach. Next week we'll be back in for some more simulation and to get a custom "basket" head brace to ensure that his head doesn't move during therapy. In the end, James needs to trust the doctor and get over any fear of the machine (no small task if anyone has ever been in a radiation room.)

As for JT's day, he had a decent day hanging with his mom. Although his mobility is greatly limited (he's trying to work through balance issues) he is in seemingly good spirits. His uncle, Chris, and young cousin, Russ, stopped by this afternoon as did Jenn's friend, Allisyn, and her 3 boys. Thank you for the visits. Now, JT is resting as he gets geared up for Jack's third birthday tomorrow. The rest of us will follow his lead shortly.

Love to you all,
dct

10 comments:

Stephanie said...

You are a strong and united family and James' courage and ambition to remain an active young lad will help him through all of this - we can only pray for all of the above and more.

kbalzano said...

Welcome home, we've missed you! Is it safe to lift the shades?? Just kidding. We love you guys!!!

Poulins said...

Happy Birthday, Jack!!!
Eat lots of ice cream.
Love,
David, Daniel and Morgan

Kerry said...

I know you have heard it many times but you really are in the best hands in the world at BBCH. Keep the faith and know that my prayers are with your family.

Kerry Audet

Lavender Lady said...
This comment has been removed by the author.
Lavender Lady said...

Many happy and hopeful thoughts and prayers go out to you all during this time and those to come. You are an amazing family of incredible strength and grace. May it come back to you tenfold.

Memere said...

Welcome home, James.

Unknown said...

Dorothy was right: There's no place like home. So glad James is home surrounded by his amazing parents, brother, dog and all his stuff. Sounds like you have a long road ahead...Thinking of you and keeping you in my prayers.

Kathy Legage said...

I am so happy to hear James is home and in his own bed...it must feel good! Welcome home James!!!!!
Enjoy the b-day party!

Ms. LeGage

al said...

So good to see you guys! It is amazing how strong you are Jenn and Don. James and Jack are so lucky to have such wonderful parents. The Dowling/Brady clan are all praying and thinking of you constantly. Happy Birthday Jack...and James too next week! Hope to see you again soon!
love, al