Thursday, August 21, 2008

The past week...

(OK, so it's been a week since the last posting, and we haven't outsourced it yet, so I'll give Don a break and take a stab at it this time and see if I can come close to his wit and wisdom.)

The Taylors had a wonderful weekend being around friends and family for the last three days. On Friday we went Kingston, NH to see some old friends, on Saturday we picnicked with the MCCP, and on Sunday we joined the Taylor cousin reunion in Ferry Beach. All the while, honing our skills on either the Nintendo Ds or the Wii – I’ll tell ya, J's friend Sammy can play Wii baseball with the best of them.

Monday morning found us back at radiation therapy for the sixth and final full week – yay! We wrap up radiation on Monday the 25th. The one and only hiccup was that JT’s medi-port wasn’t seeing things our way. Even with a new needle. It was allowing meds, saline and the such to go in, but it wasn’t allowing anything out (i.e. blood return). Suddenly the wisdom of "no red, no meds" became clear. Before he got chemo, he got a dose of “catheter liquid plumber,” as I've come to call it, in hopes of clearing the gunk out. After letting the meds sit in the catheter and break down blockage, things were flowing both ways once again & we were on our way with IV antibiotics pumping away.

Apparently while getting his post-radiation hash brown fix at Mickey D's on Monday, James had a bit of a revelation. It dawned on him that McDonald’s had been giving out Star Wars toys since Friday, and he was just now getting his long-awaited Star Wars Happy Meal. Heaven forbid, he have so much fun with family and friends that he forgets about Happy Meals for 3 whole days!

Tuesday through Thursday of this week have held little excitement, fortunately. We got back into the routine of physical and occupational therapy to gain strength and motor skills, and are counting down the days until the end of radiation treatments and the beginning of school. James has expressed his disappointment with ending his daily "naps," and even said he didn't want to go to school, he just wants to keep going to the hospital to learn "doctor things." Don reminded him that there's not a Dr. in that hospital that was able to skip first grade! So James has decided he wants to be "a doctor like John," one of the many radiation care unit nurses that have been absolutely great with J. Little does he realize now the years of school ahead of him, but think of the jump he'll have on a lot of other med students with all this first-hand experience!

Take care out there & thanks again for your well wishes and support! It's really helped us get through this first phase. Have a great weekend! - Jenn

No comments: